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#medical

A Call For Help

Look, she didn’t want me to do this but I’m starting to trip out—I can’t imagine what’s going through her mind. My wife, @puravidaville, the most beautiful woman in my life and one of the most beautiful women I’ve ever met is experiencing some medical complications that we can’t get diagnosed for the life of us.

About a year prior to us leaving the United States, we began spending time in multiple doctors offices between Los Angeles and San Francisco, trying to figure out the drastic increases and decreases in her blood sugar levels. They’ve ran so many blood tests on her, extracting vial after vial of blood, and ran her through enough extensive machinery, one would think the answer would be in black and white by now—it’s not. A doctor in Los Angeles attributed her symptoms to leaky gut syndrome, prescribed some antibiotics, and sent us on our way. That seemed to work for a few months.

When we arrived in Central America, her symptoms returned. Upon visiting a doctor in Costa Rica without any luck, we were referred to a doctor in Panama who we were told could help—we went to Panama. Her thyroid came back normal, “leaky gut” wasn’t mentioned, however, for the first time in over a year of medical testing, she was diagnosed pre-diabetic—whatever the F that means?!

Around the same time, prior to leaving the states, she learned she can’t consume gluten without her chin and neck area breaking out into a sort of reddish colored rash. For those of you who have been following us, you’re already aware that she and I are about as healthy as we can possibly be with our eating habits. Neither of us eat meat other than fish, we don’t consume any dairy, there’s actually a wOrd that defines our eating practices—pescatarian. On top of that, Pura doesn’t consume any table sugar, she doesn’t cook with it, purchase it, nothing. The only sweetener she’ll use, even when cooking is, Agave, xylitol on occasion, but primarily fructose from apples—that’s it!

Pura doesn’t smoke. She partakes in zero street drugs. She doesn’t drink alcohol, ever. She consumes at least 1,000 calories a day in fruits and vegetables and she’s a runner—she runs, on average, 3 miles per day. She doesn’t drink any types of sodas, in fact, she won’t even drink coffee in the morning until she’s had 1 liter of water. We’re the couple at the restaurant who only orders water. Her energy levels aren’t an issue, she never feels sick or anything like that until recently when she consumes gluten—it upsets her stomach for about an hour, along with the irritated skin. They both seem to subside around the same time.

She’s active, she’s aware of her symptoms and doesn’t tread lightly. She has no problems sleeping, her appetite isn’t affected, and her state of mind is never in question. She was diagnosed with a rare pancreatic disorder at a really young age, in her teens and, just recently, her blood pressure now consistently runs low between 58 and 65. I can’t think of any other descriptions to tell you right now although I’m sure I’m missing one or two. Can someone, anyone, please explain this:

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These hives just began appearing the week we left Greece (two weeks ago) and now they seem to be reappearing about every other day. She called me when I was at the gym in a panic talking about “we have to go see a doctor, I have hives all over my legs!” I mistakenly assumed she was overreacting but, nonetheless, I rushed back to the apartment to see what she was panicking about. Between the gym and the apartment was a pharmacy. I stopped by and explained to the pharmacist “my wife is having an allergic reaction to something, probably a bug bite, can I get some allergy medicine?” The pharmacist gave me a tube of topical ointment and a 24-pack of pills similar to benedryl.

I walked in the door and saw her legs like “oh my God!” She wasn’t overreacting at all and, for the first time in a long time, I was pretty alarmed. We immediately applied the topical ointment, I think I fed her about a half dozen of the allergy pills and, within an hour, the hives went away.

Before we left Greece, she experienced the hives one more time, took an allergy pill, they went away. But now it’s happening every other day.

Our plan is to go back to the UK, most likely sooner now than later, where she can receive medical attention and hopefully be diagnosed properly. The problem with that is, we’ve visited multiple doctors in multiple countries now, seeking assistance over the same issues and have yet to receive a proper diagnosis. Can you help? Do you know someone who can help? Have you ever heard of or seen anything like this? Don’t be shy. I’m asking you to utilize your resources and help us figure this out.

With everything I just described, as plainly as I can describe it, we’ve taken the same description to various medical facilities and, here I am, reaching out to a bunch of virtual strangers because we need some help.

The cover image is a photo I just snapped 30 minutes ago from a seated position—this is while standing:

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Since #writing this article, it’s been about an hour now, the hives have all but subsided thanks to the allergy pill we received in Greece. We really don’t know what to do anymore and I’m hoping someone reading this can pin-point exactly what’s happening—God willing. The hives primarily only occur on her upper thigh area, both legs, with occasional red bumps on her calves and feet. She feels it in her feet first—they begin itching around her ankles. They don’t spread above her waist line.

If you think you know what is going on with her, after this extensive description that she’s going to want to choke me out for revealing, or you’ve seen similar symptoms and know what’s behind it—we’re all eyes. Ask around, please, post around, whatever you have time to do, we both would really appreciate it, we’re open to just about any suggestions at this point. Thank you in advance.

Sincerely,

Puradays

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Comments · 26

  • @birdsinparadise(68)· 2440d

    @puravidaville!!!!! I just read this and so much of this sounds familiar. My youngest daughter who is gluten/dairy/sugar free, has beaucoup allergies and life threatening asthma has has these hives as well. In her case Allegra is the allergy med which helps with the hives. It is called Urticaria and can be attributed to physical changes in the environment pressure/cold/heat or stress/anxiety. Originally the hives would happen in the gym when she would work out. But she has even had them when outside in cold weather. Taking allegra has definitely lessend the frequency of occurance. Staying gluten/dairy and sugar free has really helped her. I am so sorry you are faced with these crazy symptoms, it has to be so stressful while you're traveling. I'll be praying for you!!!! xx God bless you guys!

  • @lizelle(79)· 2447d

    Oh man so sorry to hear Pura is having health issues! I remember when you wrote about the hives in Greece and thought it was just an allergy but this sounds quite alarming! If conventional meds don't help and you've ruled out allergies, I would seriously consider finding a good homeopath. I will ask the one I have seen what Pura's symptoms sounds like; she lectures mostly nowadays but may just have an inkling what it could be. Praying you get to the bottom of this!

    Posted using Partiko Android

  • @lenasveganliving(69)· 2450d

    Oh my gosh! My sweet @puravidaville , I had no idea, last time we spook she was getting better. I am definitively no expert, but I would say, that only systematic allergy testing could possible tell. It could be anything, from food, detergent, dust, soup or even fabric. I really hope you guys will figure out soon. Sending lots of hugs 💖

  • @nutman(60)· 2451d

    Apologies if this has already been mentioned - no time to read all the comments! But do you suffer from a lot of stress? Even if you think you don't, you may. It's called hidden stress. My partner is a counseller / psychotherapist and spends a lot of time reading research done by Gabor Mate, a very well respected psychologist who has done some ground breaking research on stress. He has a book called "When the Body says No, the cost of hidden stress", among many others. The book is essentially about the mind-body connection exploring the connection in conditions and diseases such as arthritis, cancer, diabetes, heart disease, IBS, and multiple sclerosis. I have watched a lot of interviews / lectures by him and he is truly an inspiration. Check him out on Youtube to get an idea of what I'm talking about. Your condition may be related so it could be worth exploring.

  • @anonymity5(50)· 2452d

    A couple of years ago ... when I traveled to Europe ... I had something similar ... not sure if hers itch ... but I got these itchy hives everywhere ... the dr said it was a reaction to something I ate ( even tho I didn’t eat anything different than what I ate at home) he had given me a shot of something similar to aBenadryl shot and some pills for allergic reactions ... it cleared it up surprisingly .... he said it was an allergy to something I was having that I must have developed more recently .

    Not sure that’s what it is obviously .... but try allergy medicine it might just take care of the symptoms at least for now until you figure it out.

  • @byebyehamburgers(74)· 2453d

    Sad to hear, I hope you guys manage to find out what's causing it and how to fix it. Not sure if I'm able to help. I do suffer from psoriasis which kind of looks similar and manage to keep that in check with a plant based diet along with making sure I sweat heavily at least a couple times each week which does wonders for my skin.

  • @ninahaskin(72)· 2453d

    Sorry I am not able to provide an answer as to how to stop the itchy, bumpy rash/hives from reoccurring @puravidaville

    From personal experience if you want relief from agonizing itching, I highly recommend taking a warm bath into which you add a cup of distilled vinegar. Another thing that helped stop the itchiness was to put Epsom salt on a wet washcloth and rub it over the itchy bumps till the salt disolved -- also while in the bathtub. You can repeat the vinegar baths and Epsom salt, several times a day. I had a nasty case of poison oak in June that took over a month before it fully went away. Clobetasol Prop Ointment was prescribed as I wasn't a candidate to have a steroid shot due to side effects. Please let me know if this helps!🛀🧴

    My first guess is that the hives might be a weird undocumented side effect that occurs after you take certain medications that don't mix well in your system. An endocrinologist might be able to help.

    You're a terrific husband to seek help from the community @dandays Good luck!

  • @creativetruth(71)· 2453d

    I get hives sometimes on my toes and skin after I injest oranges or juice. Could be an allergy. I think the penicillin creates a reactive mold in my body, and the feet are a breeding ground for traces of fungus, causing an internal biological battle.

    Do you ever try a detox or fasting?

    Have you tested water for contamination and heavy metals?

    I get dry skin from our hard water. Many of my skin problems are alleviated by rubbing castor oil into the pores. It seals in moisture and draws out toxins.

    Sorry I cannot tell you what is causing your health problem. Hope you discover a good solution.

  • @haseebasifkhan(62)· 2454d

    Not good for health

  • @janton(71)· 2454d

    Howdy sir dandays! I have no medical knowledge of this affliction but will resteem this and I'll be praying for you guys.

  • @thebigsweed(73)· 2454d

    Thinking of you guys! @puravidaville, I hope you find some relief somewhere. It's always nice to have someone in your corner, especially a guy like @dandays. I'm sure the opposite is also true!

    💕

  • @arcange(79)· 2454d

    Congratulations @dandays! Your post was mentioned in the Steem Hit Parade in the following category:

    • Comments - Ranked 6 with 61 comments
  • @vincentnijman(74)· 2455d

    Have you already looked into ayurveda? I can't give any concrete advice, as I'm only researching it for about a week now, but if you haven't, you might wanna test what @puravidaville 's dosha is and what they recommend to balance her dosha.

    It might be that the advice is to mainly have warm / cooked food, for instance. There's a podcast called 'The Simple Ayurveda Podcast' with short episodes that explain things pretty well.

    I wish you a speedy recovery and send you some positive energy from Portugal

  • @farm-mom(73)· 2455d

    Bummer @dandays, sorry to hear about pura's health issues. At first glance, I thought of something new and different that she had eaten, or new clothing, or new lotion etc. but after hearing her version of symptoms, there may be a connection. Or quite possibly and more likely not connected at all. Skin rashes are difficult to pin point, but having them go away with the use of anti-allergy meds, says it is a reaction, not a symptom. As far as all the other issues??? Maybe you guys need to slow down a bit, resting your body and mind can be very healing. Send her my best, hope someone can figure it out for her. I'm sure it's very frustrating. Hugs

  • @beerlover(65)· 2455d



    Hey @dandays, here is a little bit of BEER from @eii for you. Enjoy it!

  • @eii(72)· 2455d

    !BEER for you

  • @jaguar.force(73)· 2455d

    I will use my jaguar research skills to try to help you out, give me a few hours.

  • @traciyork(75)· 2455d

    Oh, @puravidaville - I feel for your plight, and @dandays, you're a bonefide sweetheart to do this for her.

    I wish I had some clear-cut and easy answers, but unfortunately I don't. I've had my own bouts of wishing I could get an appointment with Dr. Gregory House, and I'm actually overdue for scheduling a bunch of visits with specialists.

    However, I did want to mention that one of the things I discovered very late in the game (like only 4 or 5 years ago) is that I had some extreme deficiencies - Vitamin D and Iron being the biggest issues. I've never been the world's healthiest eater, but I'd always made a point to take some supplements, including iron and D, but I wasn't keeping up with my body's demands.

    Long story short (and yeah, this is the Reader's Digest version...lol), after about six months of mega doses of the two, I stopped walking like a ninety year old woman and felt human again. I also discovered the cute little quirk I'd developed over the years of craving ice was actually Pica, and once my iron level stabilized, it went away.

    Given all the health and mental issues I'd had over the years (not to mention fairly frequent lab work), it boggles my mind that it took so long for a doctor to notice. In fact my doc said that back in the day, someone with iron as low as mine was, would've been hospitalized and transfused immediately. Fun stuff.

    If it's okay with the both of you, I'd like to add Puradays name and health concern to a "Healing & Blessing Request" post in a FB witchy group I belong to. I figure any kind of good juju can't hurt, and maybe someone in the community of about 22k people will recognize the symptoms, or be able to offer some insight.

    Speaking of, sending lots of good juju and wishes that you get answers soon. Brightest of blessings to you both.

    good juju.gif

  • @prettynicevideo(72)· 2455d

    Parasites, look into home remedies. They leave oeople like that and wont fix it but will try to fix the symptoms they give. Get into intermittent fasting and keto eating plan. Licorice tea every night. And eat herbal antibiotics like a oregano and clove. I know it may sound all very overwhelming but I'm telling you right now the medical system is not here to fix you it is here only to cover up and give you medicines for the symptoms you've got to get to the source. A lot of these genetically modified foods are being modified for people to have a chronic allergic reactions and inflammation and if you don't change what it is that you are putting into your body this will not change. Sad but true and it's becoming more and more true across the entire world and anywhere that adopts genetically modified organisms and the new paradigm shift in medical. Goldman and Sachs released a article a few years back saying that it wasn't costing affective fixing people that in order to make money they had to leave them sick and how they were switching to a symptom treatment medical paradigm. It's not gonna be an easy thing for you to do and you're probably right it off like so many other people do but it's the only way you're really gonna get fixed. Think outside of the Box .

  • @idig(58)· 2455d

    Ps- my personal testimony with mind/body work. I was getting hives (they itched like a mofo). I had bad reactions to rice, garlic, caffeine, sugar, bread and a few other things. I had digestive issues, gas, bloating, diarrhea, vomiting, acid reflux. I had muscle cramps, sore joints, chronic fatigue. They are all gone now after doing mind/body work!!! I still have my main issue i am working on but it is greatly improved and i am doing things i thought would no longer be possible. Certain personality types are especially prone to develop TMS symptoms but in reality everyone has it. If youve ever blushed before you have TMS. Just sharing my 2cents and again sending healing vibes 🙌🏿.

  • @idig(58)· 2455d

    I am so very sorry you two are dealing with this especially @Puravidaville. If you have trouble finding a cause and or after ruling out any serious issues (aka doctors cant find ish) i highly recommend looking into mind body medicine.

    Id recommend 2 books. "The Great Pain Deception " by Steve Ozanich and the Mind Body prescription by Dr John Sarno. These are all typical symptoms of Tension Myoneural Syndrome or mind body syndrome or tms equivalents.

    I hope you two find answers soon. Blessings and Prayers 🙌🙏

  • @intothewild(68)· 2455d

    @dandays, I asked a good family friend of mine in the medical field, here is what she said...”Good morning! Unfortunately it’s hard to pinpoint the reason for hives and rashes but it’s usually due to something new on or in the body. Being that they are traveling will make it even harder. Because it comes and goes I would think something like a new lotion, laundry or bath soap, perfume. Or something new she is taking like a vitamin, supplement, medication? Benadryl helps Hannah when she gets them but if they get bad she usually ends up having to get an oral steroid, topical things don’t seem to help her much.” Hannah is her daughter FYI. I’m sure you’ve deduced new items like lotions or pills, but maybe not. And an add on from her...”🤗😘 I hope they figure it out. Tell them it’s usually nothing to get too alarmed about. More uncomfortable than anything. Actually nerves and stress can cause them too but being on the lower body I’m thinking something new. Even new clothing if it hasn’t been washed before wearing.”

    I’ll keep asking around, hopefully it goes away and never comes back. I’ll be thinking of you guys and praying it goes away.

    Posted using Partiko iOS

  • @dandays(73)· 2455d

    @cicisaja @scorer @plantstoplanks.

    Thank you for resteeming this one—I have a tough time believing she’s the only person who’s experienced these symptoms. Reaching out to Steemit is about the only thing we haven’t tried yet. A big ol’ smooch across the board—thank you.

  • @plantstoplanks(72)· 2455d

    Dang you guys. Super bummed to hear Pura is having such a rough go of things. I've had my fair share of fights with hives, but mine are always triggered from external allergens. #snowflakeskin

    I'm out of my scope of expertise, so all I can add is my support and good energy. Though I will call @riverflows over to see if she knows if any of the @naturalmedicine folks might have any ideas on other avenues to research? You could also try hopping in their discord to chat, as well. Some really knowledgeable peeps in there, so couldn't hurt to check. 💚💚💚

    Posted using Partiko Android

  • @cicisaja(65)· 2455d

    Oohh poor @puravidaville.. I have no idea what happened to you, but you really need to see doctors.. I was guessing it's urtikaria, but with the symptoms you mentioned above, my mind lead me to a silly thought about leukeumia and eritema multiformis.

    My sister in law once experienced the same hive after being 12 hours sitting on the train from her home to ours. I gave her anti-alergic pills because I thought it was caused by something she ates before, but then we went to see doctor and found out that it's caused by exhausting.

    If it never happened to you while you're still in USA, particular tropical paracites could be the cause of it too. Dermatitis atopi something.

  • @puravidaville(61)· 2455d

    List of clear symptoms: hair shedding, nausea 1.5 hrs after eating (doesn’t seem to matter what it is i.e. carbs vs just veggies), chest angina, frequent urination, low blood sugar, high blood sugar, pancreatitis (onset 13 yrs old and now appears at first sign of yeast infection), eyes sensitive to sunlight, excessive gas after eating anything with sugar or gluten, diarrhea/constipation (mostly the first one though), water retention, slight weight gain with no change in diet or exercise, difficulty losing the weight even with fasting, brain fog, hypoglycemic, missed periods when others every regular, general fatigue but I muscle through, low blood pressure (between 49-60, I take it twice a day, everyday), when it’s cold my toes and fingers go numb… I’m sure I’m forgetting some…

    I’m 36, 138 pounds, 5’4, jog regularly, walk 10,000 steps a day at least, eat a pescatarian diet with very low sugar content, tried a Candida diet for 6 months, tried a fish keto diet for 2 (lost too much weight and found it difficult to eat enough daily calories plus I still had many of the symptoms, am currently eating a diabetic friendly diet, only take 1 vegan digestive enzyme a day with dinner and 1 travel probiotic in the morning, no birth control, no other medications, no gluten, no sucrose, light carbs, lots of water, light caffeine (only in morning w 1 cup coffee black)… ask me anything and I’ll tell you.

    Not sure if anyone can help or has an idea but we are open to theories. Attn: doctors or health/holistic healers and students. Maybe this is the riddle you’ve been looking for.

    Thank you all for your support.

    P.s. @dandays, I’m not upset. Thank you for loving me 😘